My wife, 76, had a superior memory all her life but it has declined over the past 4-5 years and is now out in the open between us. She recognizes the decline but sees it as something she can overcome by exercising her brain (to which she refers regularly).
Her main symptoms are loss of short-term and long-term memory. She doesn't remember any of the trips we have taken, has lost familiarity with the streets and stores in the town where we have lived for over 50 years (though she is relearning gradually), uses generic words for specific ones (she might call a kitchen cabinet a closet) and asks me to repeat the date and time of my doctor's appointment 3 or 4 times.
Our two daughters are adamant that she should not be driving for safety reasons, even with me as a passenger. She has gotten lost a couple of times, cell phone to the rescue. Otherwise she is a very careful driver, always has been. We went out recently so she could practice (which she insists is the key to solving her problem of navigation) and she handled the car well but had me confirm which way to turn before reaching every intersection. This was a drive to each of several friends' homes.
She has a mild form of epilepsy (never any blackouts, just momentary "tingles"), is on medication and has been episode free for 3 years. When it was first diagnosed she was prohibited from driving until she was episode free for 3 months and hated this restriction. To have that restriction in place again would be devastating as, again, she thinks she just needs to practice more (to know her way around).
How will I know when she is unsafe to be driving? Again, the girls think it's pretty much now. She has been diagnosed with mild cognitive impairment but not dementia so would there be a legal liability if she got in an accident?
Thank you for setting a great example.
It isn’t easy to give up independence but it is necessary.
I could say that I am proud of you for your selflessness, which I am but I think it is more important for you to be pleased with your own actions and be proud of yourself.
As I and others noted, driving IS a privilege, not a right. If one can't maintain the car, and does start causing minor (or major) unexplained damages, it is past time to take steps!
get a driving test done !!!!
surprised doctors haven’t suggested. I think you’re too close to see situation rationally!!!!
horrible to lose independence but much worse if she causes accident.
you’re at fault because you know she’s impaired.
My grandmother, many moons ago, got lost going to her friends house. She got help to get turned around into the right direction, but she took the car home and said that was enough. A neighbor also witnessed her pulling out of the subdivision into the oncoming path of a loaded log truck. It scared her that she put others in danger. She, thankfully, hung the keys up and said no more. We were lucky that it was her decision.
After having the chat with her, go for a ride with you driving. Then go to driver's side each time after that to get her used to being the passenger. I've heard it said if you do something 10 times in a row, you are creating a habit. This won't be easy for her to give up because she is trying so hard to exercise her brain, but it is certainly safer.
Not sure how lawsuits work in your state, but I would bet another party would jump on the fact (if they knew) that her mental condition has been documented by a doctor. What assets could be lost in your state if sued? Could be big loss. I've always told my family if I am killed or severely injured in a car wreck, to go after the other driver's phone records and see if there was the possibility of distraction by phone, texts, other messages they were replying to. I get so sick of having people swerving into other lanes (with head down/phone held at steering wheel level, etc), driving slow/then fast - they think they are multi-taskers, but they are really nothing more than serious risk takers. Priority is the road.
Yes, I am completely dependent on my DW, and adult children for transportation. I am the first patient my Neuro Dr. has had the patient stop driving of their own volition, in her 20 yrs of private practice. Not once have I said, I'd like to be able to drive, I know I'm not safe out their anymore, and neither are you, if I were driving.
I'd like to encourage those of you facing this very difficult subject with your LO to bring up the driving discussion and arrange for your LO and you to have an appointment with their doctor and discuss whether they are capable of still driving. To those that are just beginning to face the driving issue, bring it up earlier rather than later when it can be very contentious. Good luck to all.
Now, a couple of comments about this story.
1. She got lost is a very safe community on roads with extremely low traffic volumes. What if this was not the case? Who would she have encountered and how patient would other drivers have been?
2. I am a trained professional in memory care and recognized the cognitive decline and confusion before she drove up the neighbor's driveway. I offered to lead her to her destination, but she insisted she was fine and declined. Her pride interfered with her own safety and I was dumb to listen to her.
3. Her confusion on location prevented her from being a safe driver. How many times have we encountered a lost driver and had to make evasive moves because the lost driver so caught up in their location search made an unexpected stop or acceleration or turn. Now imagine a person with cognitive decline trying to figure out where in the world they are? The lady who came by our house had been a resident of the town for more than 50 years and she was miles off track.
4. I see regularly in the news stories about elderly family members missing. They left in their car and haven't been seen. Some stories have happy endings and some don't. I remember one particular story of a women's body and car being found two months later because she had driven off an embankment in a rural area nowhere near her home.
5. AAA and insurance companies offer and often require driving classes for our elderly community, and this includes drivers with perfect records. Study after study has shown that the older the person is, the slower the reaction time. A younger person is going to recognize a dangerous driving situation much more quickly and respond to the situation much more quickly than an elderly driver. Add in cognition challenges and the risk of an accident increases even more.
6. Giving up driving is perhaps the hardest decision our seniors have to make. It represents a true loss of independence and a serious reality check on their age and physical decline. Often our parents/spouses do not want to recognize this as it is a clear step towards mortality. Who can blame our seniors for not wanting to face this. Admitting my spouse is declining means admitting am declining. This is the juncture where pride brings about serious consequences to the community, not just our seniors.
7. By driving a car, a person with cognition challenges endangers everyone, including themselves, their passengers, the little boy down the road, the neighbor's dog and every other car on the road. How would your LO feel if he/she hit the little boy who lived down the road because they accelerator pedal was mistaken for the brake pedal when the ball came rolling across the street?
The kindest thing you can do for a LO with memory loss is to prevent him or her from driving. Please do not let you LO's pride rule the day. This is literally a safety issue. If there is any question about a person with memory loss driving, you know deep down that it is time to stop driving.
The world would be a better place if there were more people like you in it!
1. Always grab the car keys and driver's seat first. Tell your LO you are really in the mood to drive and you know they won't mind. Then thank them for letting you drive.. Your LO will have difficulty remembering this conversation each time you drive. This will gradually get your LO out of the habit of driving.
2. Peer pressure goes a long way, so talk to some of your LO's peers. These are their friends who are the same age or older, so enlist their help. A close friend of your LO can call up LO and bring up as part of the conversation the risks of driving with a diagnosis of memory impairment. The friend can talk about how the person with memory loss will most likely be blamed even if the other driver caused the accident. And more importantly, if the person with memory loss is blamed, depending on the seriousness of the accident, the liability could lead to financial ruin for the family. Does LO want to risk family being destitute?
3. Meanwhile,, set up an appointment with your LO's doctor and tell the doctor the purpose of the appointment is that your LO's driving is no longer safe and you
need help showing your LO that it is time to stop driving.
4. Have a trusted advisor talk to LO about the pros and cons of continuing to drive.
5. if the above steps don't work, hide the keys. No keys, no car. When LO asks for keys, distract LO and "forget" to get the keys.
6. Remove the car from the premises and tell LO it is in the shop for repairs or, if you repair the car yourself, remove a part disabling the car and tell LO you are waiting for a part to come in.
7. Distraction is the key. Come up in advance with several ways to distract your LO when he/she wants to drive.
I hope this helps.
Obviously she is concerned about losing abilities by not working them. So I recommend that you have one of your grandchildren set you guys up with a video game that has driving. This can help exercise her brain and quite frankly, provide you both with some good entertainment and learning. All while safe and sound in your own home.
My dad could spend hours playing golf on my playstation.
Best of luck to both of you during this new season of life.
Despite living in the area for over 50 years, my mother could not tell my SIL how to get back to her place when he was taking her home from a baby shower. They were only several miles from her place and she had NO clue. This was an area that without cognitive issues should have been a snap to negotiate. She had already been curtailing her "circle of comfort", and was mostly down to the Senior Center, which was located on the same property as the condo area, and the grocery store/pharmacy which was just down the road.
She, like OP's wife, was only in the very early stages of decline.
For some old folks I know, driving is part of feeling like yourself and not facing the fact that you are losing some of your functions. Some old folks refuse to admit they are going deaf or need glasses. It is part of getting old. Better to face the facts and make adjustments. You need to tell her she should not drive anymore. You need to stop her. But she is very lucky because she has you to drive her. And I can see that you love her and that is wonderful.
Disclaimer: Provided one's own cognitive abilities are not declining.
Something weird is going. I write a message and it disappears and reappears after I rewrite it. I get words inserted that I did not type and some are misspelled that I have typed correctly. I can't log in correctly, I need to put my password in each time. Too busy for this and hope someone fixes it soon. I thought it was my new computer Who do we call or email?
I know that I can count on Disgustedtoo for laying it out on the line and being ‘straight up’ with all of us! One of her most endearing qualities!
Through a LOT of reading, I have concluded she has FTD, frontotemporal degeneration. It affected her memory and language first. She did what your wife is trying to do, "exercising her brain," with rituals of puzzles and games online. I don't think it really slowed anything down. She also started using generic words in place of specific ones, then gradually sank into complete aphasia.
It took a lot to convince my dad that she wasn't safe driving. My sibs and I were all very worried she would cause an accident. I had to have my dad ride in the car with me while she drove and pointed out all the unsafe choices she made in the 3 mile round trip to the store. At first he argued that "her driving choices aren't THAT bad," but he reluctantly agreed to hide the keys. She was very upset, of course. Later I learned that he secretly gave them to her when she complained enough because he didn't want to drive her himself. I think he was too close to the situation to have good judgment. We were very lucky she had no accidents before she finally stopped remembering how to drive.
Several years later, Dad totaled his car and another person's car and could have killed someone by running a red light he "didn't notice." Now he doesn't drive, either. All people over 60 should probably plan for having someone else tell them when they are unsafe to drive.
Please believe your daughters. They probably notice things you don't notice because you are used to living with your wife and the way she drives. You probably know the fable about the frog that eventually boils alive because it doesn't notice the water gradually getting hotter.
Mum's house is about 2 miles from downtown and other services, whereas I am 4 blocks from a grocery store, a 7 minute walk to the doctor's office etc.
This winter Mum has realized that she her night vision is going, especially when it is raining.
I told her that if I do not think she is safe driving, that I will make sure she can no longer drive. She replied that where she lives a car is needed (no transit). To which I responded, then perhaps she needs to think about living right in town where services are walking distance. She knows she can get grocery delivery, taxis etc.
Mum knows I am serious and she is starting to think albeit reluctantly about selling and moving closer to town. She has an older dog, who is lovely and an elderly cat and wants to make sure they can move with her. She also spends time every day in her garden and would need some green space. She would be renting
Curious if her eyesight is being caused by any condition. I dislike driving at night (out in the country, so many roads are dark) and rain makes it worse. Oncoming cars are the worst in those conditions.
I know I have cataracts developing, but the ophthalmologist had said replacement would be in maybe 10 years (that was probably 4-5 years ago.) In general, I just try to avoid driving at night, but if I have to, only local short trips.
So, could it be cataracts for her? Not trying to dissuade you or her with moving, just wondering. This can be corrected. Mac Deg vision issues are different. My mother developed that many years ago, and she went for treatments 4x/year, to preserve her eyesight. I continued those until she had a stroke around Labor Day. It was getting hard to get through the whole process with dementia, hearing issues and refusing to stand or walk on her own, but with the stroke it would have been too difficult, for her and us.
I had to take my mothers keys, she was 89 yrs old and I am STILL hearing about it. She just turned 95!! It was not easy to do but far better than living with a tragedy.
GOOD LUCK.
Is anyone eager for the day when we no longer need a "note from the doctor?"
Birth Certificate
P.E. exam for school
Vaccination report
Out sick from school
Can return to school
Cleared for sports
Excuse from P.E.
T.B. negative
P.E. for work
Out from work until
Return to work
Disability letter
Can drive/cannot drive
Competent/Incompetent
Negative T.B. test, can work in healthcare/food service
Order to be admitted to hospital, transferred to NH, Discharged from hospital
Death Certificate