Mom is paranoid thinking someone is moving things around, marking on pictures and stealing from her room. Security cameras do not support anyone being in her room when she is not there. She is also seeing people who aren’t there like her boyfriend's son and then telling us of conversations she had with them. She is also lying to cover mistakes. What can we do?
* I will check into it.
* Re-affirm as often as necessary: You are safe here.
* Do not argue and certainly never tell her that she is 'wrong' as this will set up an argument / emotionally activate / upset her. If anything, thank her for letting you know --- when switch the subject.
* If it might help, tell her that 'you' did it ... took something to clean it and will return it soon ... then change the subject.
REALLY HELPFUL________________________
* Check Teepa Snow's website - lots of information on this topic.
She just wrote a book in this topic.
Many people here would benefit from it.
Link: https://teepasnow.com/blog/do-you-see-what-i-see-hallucinations-and-delusions-in-dementia/
Some info copied here:
Have you ever witnessed a person living with dementia experience hallucinations or delusions?
While they both deal with a disconnect from reality, they are very different and come from different parts of the brain. What can cause this, and more importantly, what can you do to help and support a person experiencing them? Let’s take a look at some ideas for steps to take in the moment.
Hallucinations______________________________
Hallucinations happen when a person’s brain is either receiving faulty information from the body or the brain is not able to accurately process the data that their body is providing.
Hallucinations can be distressing for the person experiencing them as well as those around them. If a person is hallucinating, their brain is reacting to something that is not there for you.
For the person experiencing the hallucination that bugs are crawling all over their body, their brain is telling them it is all real. In an attempt to help, you may want to orient them, tell them that the bugs aren’t there; but the person can see them, can feel them on their skin, and maybe more. Assuring them that it isn’t real would be akin to me telling you that you aren’t reading this right now. You aren’t holding a phone, tablet, or computer. You aren’t sitting on a chair.
Hallucinations are most often found in Lewy Body Dementia, but can be found with other dementias and certain mental illnesses.
Delusions___________________________________
Delusions have to do with thinking, not data intake. The brain is accurately processing the data that is coming in, but the thinking process and conclusions are not logical, reasonable or rational.
For example, let’s say a man has a spot where he typically puts his wallet at the end of the day. He is worried that his son that comes over every day is going to take it, so he hides it. The next morning, he doesn’t remember that he hid his wallet, so when he can’t find it, he is very upset knowing that his wallet has been stolen.
Now that you have a better understanding of what delusions and hallucinations are and how they differ, what can you do when someone you are supporting is living with them?
The most important thing to remember is to avoid trying to orient them or arguing with them. Not only are these options not helpful, they can actually hurt your relationship.
Gena / Touch Matters
Suspicion and Delusion
A person with dementia may suspect or accuse others of theft, infidelity, or other impropriety. This can make for some awkward situations at family gatherings, where the patient may openly accuse someone in front of others. Unfounded suspicion, and more broadly delusion, can take many forms, including believing that someone is following or spying on them, that family members betray or steal from them, that the words and actions of public figures are directed at them personally, or that the events depicted in books, poems, newspapers, and movies are about them. While such beliefs have no basis in reality, the patient nevertheless believes them to be true. Delusional thinking usually occurs early in the course of dementia progression and may persist for a long time.
Help Others Respond Appropriately
· Make sure everyone understands that the patient’s behavior is not malicious and that it is dementia that is at the root of it.
· Give the accused party a heads-up so they are not taken by surprise in the event that the patient openly accuses them in the presence of others.
· Do not take accusations at face value, and do not take offense, respond defensively, or try to fight the accusations.
· Deal with the patient with understanding and compassion. Stay cordial. Be more of a listener than a speaker. Keep in mind that these beliefs are quite real to the patient.
· If the patient has gifted an item and now believes the item has been stolen, ask the recipient not to wear the item in front of the patient, or better yet, return the item.
Dealing With Delusion
· Do not try to convince the patient that they are mistaken. Remember that their judgment is impaired and they are not able to follow your reasoning. Trying to convince them may even lead to aggression.
· Try instead to find the reasons behind the suspicion and, if possible, eliminate them.
· If the patient believes something has been stolen, help them find the missing item or replace it with a new one. If they have gifted an item, ask the recipient to return the item.
· Be mindful of your demeanor. Speak in a calm and reassuring tone. Stay relaxed and help the patient calm down.
· Do not endorse suspicions and do not try to refute them. Instead, try to distract the patient with something else.
· Use relaxing and easy activities, like a walk outside, to divert the patient’s attention to something else.
You have to meet her where she is at, not where you want her to be which is in your world and not hers. They are now 2 totally different worlds and your life will be much easier if you just meet her in hers.
You can start by reading the book The 36 Hour Day, and also watch some great videos from Teepa Snow(a dementia expert)along with reading some of her books too to help you better understand this disease.
And if your mom hasn't been diagnosed yet, it's time to do just that as she has a lot of the symptoms(and obviously has it )and it will good to know what type she has as there are 100's, so the proper medication can be prescribed to help her along the way.
Dementia only gets worse, never better, so it's best understand the disease so you can give/get her the best possible care.
Being paranoid, hallucinations are common with some forms of dementia.
"Lying" to cover mistakes is also common although to a person with dementia it is not a "lie" it is what they perceive to be the truth. Or it is a coping mechanism to cover mistakes that they have made due to the dementia.
If she has not had a physical in a while it is time. Send a note to the doctor outlining the concerns you have. They may do a MME (mini mental exam) as a baseline and then send her for more testing.
If she is at risk of wandering it may be time to consider a move from AL to Memory Care.
If it is dementia sneaking up, reasong becomes less effective. Move to reassurance. That Mom is safe. That her most treasured possessions will be locked up or stored with family.
Some bring purses & costume jewellery as gifts, the real items then stored away with family.
Consider asking staff what changes they have noticed & book a medical checkup. See what you are dealing with first.
Sometimes they report to police or APS and the assigned POA or caregiver gets into trouble. Have you talked to her neuro specialist to start trying meds to calm her down?
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